Action Toolkit

For Coalitions

Cross-ideological framing guides, embeddable data visualizations, and campaign strategy resources for organizations building support for home care worker protections — from disability rights groups to fiscal conservative allies.

Framing

The same data, two audiences

Home care worker protections have natural allies across the political spectrum. The challenge is framing. The data on this site supports both a fiscal conservative argument and a disability rights/aging advocacy argument — because both are true simultaneously.

Frame 1: Fiscal conservative — institutional cost avoidance

Home care investment isn't worker benefit expansion — it's the cheapest way to keep people out of nursing homes. $48,000 per year for HCBS vs. $128,000 for institutional care. The FLSA companionship exemption saves $500–700 million (0.2% of system costs) while generating workforce instability that threatens the other 99.8%. Nevada's SB 511 raised reimbursement to $25/hr and dropped turnover from ~50% to 4% — a fiscal investment with measurable returns. Designed for: Republican legislators, chambers of commerce, taxpayer advocacy groups, budget committees.

Frame 2: Disability rights & aging advocacy — the Medicaid asymmetry

Nursing home care is a mandatory Medicaid benefit. Home & community-based care is optional. This means the cheaper, preferred option has weaker legal footing than the expensive institutional alternative. 8.4 million Americans depend on a workforce earning a median of $14.98/hr — a workforce that is 85% female and 67% people of color, demographics that trace directly to the New Deal–era FLSA exclusion of domestic workers. Designed for: Survival Coalition–type organizations, AARP chapters, disability rights networks, aging advocacy groups.

Key data

Numbers that work across the aisle

$48K vs $128K
Annual per-person cost: home-based care vs. nursing home
People without HCBS are 5× more likely to enter a nursing home
50–78%
Paid caregivers who are family members of the care recipient
~50% → 4%
Nevada workforce turnover before and after SB 511 investment

These numbers work because they reframe the debate. This isn't about whether workers deserve more — it's about whether the long-term care system can survive paying less. The workforce crisis isn't a labor story; it's a fiscal sustainability story with labor at its center.

Evidence

Case studies for your campaign

Each state profile below tells a different part of the story. Use the one that fits your audience and your state's political context.

Investment → results

Nevada

SB 511 raised Medicaid home care reimbursement to $25/hr. Turnover dropped from ~50% to 4%. The clearest available natural experiment in what workforce investment produces.

→ State profile
Vacancy crisis

Wisconsin

27.8% caregiver vacancy rate — more openings than job seekers. $48K vs $128K cost comparison. IRIS program with 50%+ familial caregiver rate. The site's primary data validation state.

→ State profile
Legislative model

California

Nation's first Domestic Worker Bill of Rights (2013). Largest home care workforce. IHSS self-directed program covers 700K+ recipients. The precedent for state-level action.

→ State profile
Wage pass-through

Minnesota

72% Medicaid wage pass-through ensures rate increases reach workers. Strong PCA program and union infrastructure. A model for ensuring legislative investment isn't absorbed by overhead.

→ State profile

View all 16 state profiles →

Resources

Tools you can use today

Data

Research Spreadsheet

90+ metric template pre-populated with WI and MN data. Add your state's data for localized talking points and grant application support.

↓ Download .xlsx
Story collection

Caregiver Stories

Real stories from caregivers, care recipients, and families. Anonymized and published alongside the metrics they illustrate. Powerful testimony for coalition meetings.

→ Stories
Legislative toolkit

For Legislators

Fiscal impact data, model legislation frameworks, and committee testimony resources. Share with allied legislators in your state.

→ Legislator resources
Research

All State Data

16 state profiles with 89 metrics each. Compare your state to others, identify local data gaps, and build your evidence base.

→ Browse state data