Data-driven research

3.7 million workers. $14.98 an hour. The hidden fiscal crisis behind America's caregiving collapse.

The FLSA companionship exemption strips wage protections from the workforce that keeps 8.4 million elderly and disabled Americans out of nursing homes — saving the government 0.2% of system costs while impoverishing the very families it claims to protect.

27.8%
Caregiver vacancy rate in Wisconsin — more openings than job seekers in the entire state
People without HCBS are 5× more likely to enter a nursing home
$48K
Annual cost of home-based care vs. $128K for a nursing home in Wisconsin
$911B
Federal Medicaid cuts over 10 years — with HCBS bearing disproportionate risk
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Four ways into the data

Whether you're a family caregiver, a policymaker, a journalist, or building a coalition — the same data tells different stories.

The argument

An exemption that saves little, costs much, and harms those it claims to protect

The familial caregiver paradox

In the nation's largest self-directed care programs, 50–78% of paid caregivers are family members of the care recipient. The exemption doesn't transfer savings from workers to families — it transfers income from low-income family caregivers to government budgets. The family neither saves money nor receives better care; it simply has less household income.

The fiscal arithmetic

The exemption saves an estimated $500–700 million annually — roughly 0.2% of the $313 billion HCBS system. Meanwhile, cutting HCBS generates massive institutional cost blowback: a 30% reduction would add $943 million in nursing home costs. Every dollar not spent on a $48,000 HCBS participant risks generating a $128,000 nursing home resident.

The workforce shaped by exclusion

The workforce is 85% female and 67% people of color. The companionship exemption traces directly from the New Deal–era FLSA exclusion of domestic workers — an exclusion documented as a deliberate racial compromise. The 1974 amendments that created the exemption were led by Shirley Chisholm precisely to address this history, yet preserved the carve-out she fought against.

State data

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Metric Your State National Avg. Source
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Data sourcing

Every metric links to its primary source. Public = publicly available. Proxy = proxy or derived. FOIA = requires FOIA request or independent analysis. Full methodology and source registry available on the Methodology page.